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Pioneering new programme to drive Alport syndrome research
We are delighted to announce that, in partnership with the Stoneygate Trust, we will be launching a brand-new programme to accelerate research, transform early diagnosis and to develop specific treatments for Alport syndrome: The Stoneygate and Kidney Research UK Alport Research Hub. The programme is designed to make sure the best research happens with the best people in the…
Why I want to make this film for my dad
Last month we shared the news that former BBC producer Andrew Smith and his family were on a mission to make a thought-provoking film about organ donation, after his successful kidney transplant. Now Andrew’s daughter Camille, the film’s producer is centre stage. She shares her insights into life as part of a transplant family and their ongoing…
Rare disease diagnosis came too late for Mum
Lynda Balchin was a hard-working mum who always put others first. She was the glue that kept her family together and her life revolved around her three daughters Louise, Rebecca and Abbey. For as long as they could remember, their mum had always been tired. Lynda had an exhausting cleaning job at a Surrey hotel…
From trauma to giving back: Jason’s Covid recovery mission
Wherever possible, Jason Mageehan has always tried to turn adversity into opportunity – whether arranging client meetings to coincide with dialysis sessions or viewing his kidney transplant operation as a springboard to achieving personal and business goals. Now, therapy to deal with the trauma of his recent fight for life against Covid-19 has helped Jason identify a new purpose…
Being a kidney patient during the Covid-19 pandemic
With Covid-19 numbers rising significantly, the rapid spread of the new Omicron variant and restrictions slowly coming back into force there has never been a more worrying time for kidney patients and their loved ones. In light of this, we asked members of our lay advisory group how they are feeling. Miranda Scanlon The harsh…
TV star faces the reality of organ donation and gives the best Christmas gift she can.
When Married At First Sight star Marilyse Corrigan discovered her ex-partner Shaun needed a kidney transplant, she didn’t hesitate to offer up one of her own. Shaun, the father of her two children, Josh, 13, and Callum, 16, had suffered from polycystic kidney disease for years. In 2019, he was told he needed a transplant. Marilyse Corrigan in…
Boy steps into Christmas to raise vital funds for kidney research
Warrington mum Claire Smith and her seven-year-old son Will are embarking on an exciting challenge this Christmas to raise vital funds for charity. Walking 8,500 steps a day, as part of the Step into Christmas challenge, throughout December to represent the 850 million people worldwide living with kidney disease, Will and Claire will be raising…
Latest evidence on the risk of Covid-19 for kidney patients
Following the statement we published on Tuesday 14 December about kidney patients needing to be extra vigilant we now have the results from a study that was published* on Thursday 16 December. This showed that amongst people who had been double vaccinated, those with chronic kidney disease, on dialysis or who had had a kidney…
Kidney community steps up to support Kidney Beam
Title Description Kidney Beam, the platform helping kidney patients’ wellbeing through live, online and on demand exercise classes and programmes, is being bolstered by support across the kidney community. In an unprecedented move, Kidney Research UK is joining forces with Kidney Care UK, the National Kidney Federation and the UK Kidney Association, to provide financial…
Latest information on Covid-19 for kidney patients
Kidney patients should be extra vigilant over the festive period as the latest evidence confirms that they are at substantially increased risk of being seriously ill or dying from Covid-19 compared to the general population. Get the latest update from The Kidney Charities Together group.