Skip to content

NICE process “not appropriate for a rapidly evolving virus”

NICE process “not appropriate for a rapidly evolving virus” 12 December 2022 We have submitted comments relating to NICE’s draft guidance on therapeutics for people with Covid-19, following the regulatory body’s draft decision to dramatically reduce the number of available treatments. We highlighted that the relevant evidence failed to consider the impact on high-risk patients…

Read More

Supporting patients for fair access to anti-virals for Covid-19

Supporting patients for fair access to anti-virals for Covid-19 16 November 2022 The National Institute for Health and Care Excellence (NICE) has today published draft recommendations to drastically reduce the number of anti-viral treatment options available for people with Covid-19. With large numbers of people on immunosuppressants or with poor kidney function left exposed by…

Read More

Evusheld vigil announcement for Covid-19 patient campaign

Evusheld vigil announcement for Covid-19 patient campaign 17 October 2022 A campaign calling for immunocompromised people to be able to access a treatment which could help protect them from getting Covid-19 will culminate with a vigil in Parliament Square on Wednesday 26 October.  A proportion of kidney patients, especially among those with kidney transplants, remain…

Read More

Raising awareness of early diagnosis in Parliament

Raising awareness of early diagnosis in Parliament 27 July 2022 Last week we were in Parliament raising awareness of kidney disease and the importance of early diagnosis. The event was organised by Healthy-io, who manufacture a home urine testing device for kidney function.  Baroness Floella Benjamin and Alison Railton at the event. The event forms…

Read More

NICE decision brings transplant hope to highly sensitised patients

NICE decision brings transplant hope to highly sensitised patients 17 June 2022 Kidney Research UK has welcomed a decision by the National Institute for Health and Care Excellence to recommend a treatment to enable people who are highly sensitised to have a kidney transplant without the organ being rejected. What is imlifidase? The new treatment,…

Read More

New longterm mental health and wellbeing plan for England

New longterm mental health and wellbeing plan for England 06 May 2022 On 12 April the Westminster Government published a consultation on its new Mental Health and Wellbeing Plan for England. The ‘call for evidence’ is designed to inform a new 10-year mental health plan to prevent mental ill-health, improve mental health support across the…

Read More

Bringing positive change to mental health

Bringing positive change to mental health 06 May 2022 This year kidney patients have been sharing their mental health experiences as part of our campaign calling for improved access to specialist mental health support from renal counsellors. Now, a new Government consultation on mental health provides a key opportunity for kidney patients’ voices to be…

Read More

Survey reveals impact on kidney patients’ mental health – time for action

Survey reveals impact on kidney patients’ mental health – time for action 23 February 2022 We are calling for better mental health support for kidney patients after a recent survey of over 1,000 kidney patients uncovered the significant impact the disease has on their mental health. Our survey discovered that two thirds (67%) of kidney…

Read More

Northern Ireland organ donation law progress

Northern Ireland organ donation law progress 09 February 2022 Legislation intended to increase the number of organs available for transplant in Northern Ireland has passed through the final stage in the Assembly. The ‘soft opt in’ legislation will bring Northern Ireland in line with the rest of the UK. It means that people who die…

Read More

New opt out organ donation law begins in Scotland

New opt out organ donation law begins in Scotland 26 March 2021 Scotland’s organ and tissue donation law changes to an ‘opt out’ system from today (26 March 2021). This means people are assumed to be potential organ donors after they die, rather than having to sign the register, or opt in, to be a donor.  This ‘opt out’ system, also called deemed consent or presumed consent, means people need to sign the opt out register if they do not…

Read More
Scroll To Top