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First itch treatment for haemodialysis patients recommended for approval by NICE

First itch treatment for haemodialysis patients recommended for approval by NICE 17 April 2023 For the first time, a treatment specifically licensed to treat pruritus (distressing, itchy skin) has been recommended for approval by the National Institute for Health and Care Excellence (NICE) in their draft guidance today. Difelikefalin, which is administered during dialysis,  would…

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Government welcomes our Scottish kidney report

Government welcomes our Scottish kidney report 08 March 2023 The Scottish Government has responded positively to our policy report ‘Changing the future for chronic kidney disease in Scotland’ and has committed to do more to support kidney patients in Scotland. Our report published last year made a number of recommendations for the Scottish Government, including…

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Northern Ireland legislation offers more hope to transplant patients

Northern Ireland legislation offers more hope to transplant patients 01 March 2023 New legislation has been passed to allow an opt-out organ donation system to be implemented in Northern Ireland, bringing greater hope to people on the transplant waiting list. The law was named after six-year-old Dáithí Mac Gabhann, who needs a heart transplant. The…

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NICE U-turn gives kidney patients much needed Covid-19 treatment

NICE U-turn gives kidney patients much needed Covid-19 treatment 22 February 2023 Kidney Research UK has welcomed the revised decision by the National Institute for Health and Care Excellence (NICE) to continue access to sotrovimab (Xevudy) for the treatment of kidney disease patients who are at high risk of progressing to severe Covid-19. What is…

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Kidney disease can be life-changing

Kidney disease can be life-changing 27 January 2023 Kidney Research UK volunteer Melany Gray wants to make a difference. She hopes that by sharing her story, she can help to persuade the Scottish Government to create a national strategy to combat chronic kidney disease (CKD). Melany Grey The effect of a long-term condition Melany has…

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Rugby referee joins campaign for kidney strategy

Rugby referee joins campaign for kidney strategy 25 January 2023 Scottish Rugby Union referee Jamie McGregor wants policymakers to tackle kidney disease head on.  Just as strategy and cohesion are key to a team’s success on the pitch, he believes that governments throughout the UK need to develop clear national strategies to combat chronic kidney…

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Supporting the kidney community to campaign for change in Scotland

Supporting the kidney community to campaign for change in Scotland 24 January 2023 Kidney disease forced Angela Riley to cut short a career in social care, but she is determined to keep helping people as a campaigner for change and as a community ambassador volunteer for Kidney Research UK.  Angela, who has type 2 diabetes,…

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Taking the kidney cause to Holyrood

Taking the kidney cause to Holyrood 23 January 2023 We’re calling on the Scottish Government to tackle kidney disease as a core priority.   In the first of a new wave of activity aimed at the UK’s decision makers, we are asking people across Scotland to support our drive for a national strategy to combat…

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Kidney disease patients “misunderstood and overlooked” in Scotland

Kidney disease patients “misunderstood and overlooked” in Scotland 13 December 2022 We have called on the Scottish government to develop a national strategy to combat chronic kidney disease (CKD). We published a report this week following a roundtable discussion in September to identify the opportunities to transform outcomes for people with CKD in Scotland. Convened…

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Changing the future for CKD in Scotland

Changing the future for CKD in Scotland 12 December 2022 We’re delighted to have launched a report ‘Changing the future for chronic kidney disease in Scotland’. The report sets out the main opportunities and barriers for improving the management of CKD in Scotland and makes recommendations for the Scottish Government and NHS Scotland. You can…

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