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Kidney disease can be life-changing

Kidney disease can be life-changing 27 January 2023 Kidney Research UK volunteer Melany Gray wants to make a difference. She hopes that by sharing her story, she can help to persuade the Scottish Government to create a national strategy to combat chronic kidney disease (CKD). Melany Grey The effect of a long-term condition Melany has…

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Rugby referee joins campaign for kidney strategy

Rugby referee joins campaign for kidney strategy 25 January 2023 Scottish Rugby Union referee Jamie McGregor wants policymakers to tackle kidney disease head on.  Just as strategy and cohesion are key to a team’s success on the pitch, he believes that governments throughout the UK need to develop clear national strategies to combat chronic kidney…

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Supporting the kidney community to campaign for change in Scotland

Supporting the kidney community to campaign for change in Scotland 24 January 2023 Kidney disease forced Angela Riley to cut short a career in social care, but she is determined to keep helping people as a campaigner for change and as a community ambassador volunteer for Kidney Research UK.  Angela, who has type 2 diabetes,…

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Taking the kidney cause to Holyrood

Taking the kidney cause to Holyrood 23 January 2023 We’re calling on the Scottish Government to tackle kidney disease as a core priority.   In the first of a new wave of activity aimed at the UK’s decision makers, we are asking people across Scotland to support our drive for a national strategy to combat…

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Kidney disease patients “misunderstood and overlooked” in Scotland

Kidney disease patients “misunderstood and overlooked” in Scotland 13 December 2022 We have called on the Scottish government to develop a national strategy to combat chronic kidney disease (CKD). We published a report this week following a roundtable discussion in September to identify the opportunities to transform outcomes for people with CKD in Scotland. Convened…

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Changing the future for CKD in Scotland

Changing the future for CKD in Scotland 12 December 2022 We’re delighted to have launched a report ‘Changing the future for chronic kidney disease in Scotland’. The report sets out the main opportunities and barriers for improving the management of CKD in Scotland and makes recommendations for the Scottish Government and NHS Scotland. You can…

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NICE process “not appropriate for a rapidly evolving virus”

NICE process “not appropriate for a rapidly evolving virus” 12 December 2022 We have submitted comments relating to NICE’s draft guidance on therapeutics for people with Covid-19, following the regulatory body’s draft decision to dramatically reduce the number of available treatments. We highlighted that the relevant evidence failed to consider the impact on high-risk patients…

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Supporting patients for fair access to anti-virals for Covid-19

Supporting patients for fair access to anti-virals for Covid-19 16 November 2022 The National Institute for Health and Care Excellence (NICE) has today published draft recommendations to drastically reduce the number of anti-viral treatment options available for people with Covid-19. With large numbers of people on immunosuppressants or with poor kidney function left exposed by…

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Evusheld vigil announcement for Covid-19 patient campaign

Evusheld vigil announcement for Covid-19 patient campaign 17 October 2022 A campaign calling for immunocompromised people to be able to access a treatment which could help protect them from getting Covid-19 will culminate with a vigil in Parliament Square on Wednesday 26 October.  A proportion of kidney patients, especially among those with kidney transplants, remain…

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Raising awareness of early diagnosis in Parliament

Raising awareness of early diagnosis in Parliament 27 July 2022 Last week we were in Parliament raising awareness of kidney disease and the importance of early diagnosis. The event was organised by Healthy-io, who manufacture a home urine testing device for kidney function.  Baroness Floella Benjamin and Alison Railton at the event. The event forms…

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