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New book to help children at Manchester hospital facing kidney transplant

20 March 2024

A new set of books have been launched today, specially tailored to support children with kidney disease being treated at Royal Manchester Children's Hospital.  

The hospital will be gifted copies of books created by Get Better Books and funded by Kidney Research UK and the Hobson Charity to help children prepare for a kidney transplant.  

Three ladies and one male standing in a line holding the Get Better Books book and passport
Yvie Morley, Georgina Potier, Liz Edwards, and Jake Abrams

My New Kidney and My Renal Passport

The playful, interactive books show what to expect in the lead up to and after their operation using a fun approach to alleviate anxiety. Titled ‘My New Kidney’, the book for children is designed to encourage the recipients to colour, comment, write questions, draw and stick things in – creating important engagement so families can explore the transplant process together. The books are hand finished with holographic sticker, gold envelope and letter, felt tips and printed drawstring bag.  

A second book specifically for older children and teenagers has also been designed with content more appropriate for their age, this is called ‘My Renal Passport’ it contains information about the transplant the child will be having, nutrition and dietary advice and importantly space for the children to write in about their feelings and any questions they want to ask their healthcare team. 

The books have been made bespoke to the patients and the hospital they attend. Including a map of Manchester showing the children a route home from their operation, they create a unique feel both culturally and geographically.  

“We wanted to offer support to families, at what can be a very stressful time,” explained Chris Beyga Trusts Manager from Kidney Research UK. “The children will often have been through a great deal in their short lives. The team at Get Better Books have worked closely with Dr Shenoy and the staff at the hospital and created this fantastic guide for children, siblings and their parents.”  

All children who are preparing for a transplant will receive their own copy of the book which comes with felt tips and a ‘My New Kidney’ drawstring bag. The book can be used by the children and their families to talk about the transplant before, during and afterwards. 

Support children and families

Non-profit publishers Get Better Books have previously worked with Great Ormond Street Hospital and Alder Hey Children’s Hospital in Liverpool to create bespoke patient materials for children facing a range of clinical conditions. Their designer and illustrator Georgina Potier said:

“We started Get Better Books with the goal of creating beautiful, interactive books and communication design to help paediatric patients understand their treatment, alleviate anxiety and get better!” 

Dr Mohan Shenoy, consultant paediatric nephrologist at Royal Manchester Children's Hospital "This book is a great resource for children and adolescents who have received a kidney transplant. It provides excellent information to the child and their parents about how to look after their new kidney and also encourages the child to be more involved in their management."

Passport being held up outside of hospital entrance

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